Setting up strategies: patient inclusion in biobank and genomics research in Europe
نویسندگان
چکیده
منابع مشابه
Setting up strategies: patient inclusion in biobank and genomics research in Europe
Rare disease patient organisations have a tendency to be deeply involved in research development and infrastructures, and are practiced at founding strategic alliances with clinical and research networks [1]. In building an integrated platform for rare disease databases, registries, biobanks and bioinformatics through the RD Connect project, we wanted to explore explicitly and in detail, the in...
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ژورنال
عنوان ژورنال: Orphanet Journal of Rare Diseases
سال: 2014
ISSN: 1750-1172
DOI: 10.1186/1750-1172-9-s1-p2